For All the People: A Century of Citizen Action in Health Care Reform

PubMed Central (PMC) is a free archive of biomedical and life sciences journal literature at the U.S. National Institutes of Health’s National Library of Medicine (NLM). In keeping with NLM’s legislative mandate to collect and preserve the biomedical literature, PMC serves as a digital counterpart to NLM’s extensive print journal collection. Launched in February 2000, PMC was developed and is managed by NLM’s National Center for Biotechnology Information (NCBI).

There are many health care access and reform topics to research on the PMC site, below are a selection of subjects.

VISIT: //www.ncbi.nlm.nih.gov/pmc/
VISIT: National Center for Biotechnology Information: //www.ncbi.nlm.nih.gov/

• Access to Health Care
  • Allen, Heidi et al. “The Role of Stigma in Access to Healthcare for the Poor.” The Milbank Quarterly 92, no. 2 (June 2014): 289-318. doi:10.1111/1468-0009.12059.
  • Baiker, Katherine; Congdon William J.; and Mullainathan, Sendhil. “Health Insurance Coverage and Take-Up: Lesions from Behavioral Economics.” The Milbank Quarterly 90, no. 1 (March 2012): 107-134. doi:10.1111/j.1468-0009.2011.00656.x.
  • Bradley, Cathy J.; Neumark, David; and Motika, Meryl. “The Effects of Health Shocks on Employment and Health Insurance: The Role of Employer-Provided Health Insurance.” International Journal of Health Care Finances and Economics 12, no. 4 (December 2012): 253-267. doi: 10.1007/s10754-012-9113-2.
  • Clark, J. “Medicalization of global health 4: the universal health coverage campaign and the medicalization of global health.” Global Health Action 7 (May 2014). doi: 10.3402/gha.v7.24004
  • Jia, Liying et al. “Strategies for expanding health insurance coverage in vulnerable populations.” The Cochrane Database of Systematic Reviews 11 (November 2014): 1–78. doi:10.1002/14651858.CD008194.pub3.
  • Paez, Kathryn A. et al. “Development of the Health Insurance Literacy Measure (HILM): Conceptualizing and Measuring Consumer Ability to Choose and Use Private Health Insurance.” Journal of Health Communication 19, no. 2 (October 2014): 225-239. doi: 10.1080/10810730.2014.936568.
  • Quesnel-Vallée, Amélie et al. “Assessing barriers to health insurance and threats to equity in comparative perspective: The Health Insurance Access Database.” BioMed Central Health Services Research Journal 12, no. 107 (July 2012). doi:10.1186/1472-6963-12-107.
• Health Care Policy
  • Barcellos, Silvia Helena et al. “Preparedness of Americans for the Affordable Care Act.” Proceedings of the National Academy of Sciences of the United States of America 111, no. 15 (April 2014): 5749–5502. doi:10.1073/pnas.1320488111.
  • Cummings, Janet R. et al. “Geography and the Medicaid Mental Care Infrastructure: Implications for Health Care Reform.” Journal of the American Medical Association, Psychiatry 70, no. 10 (October 2013): 1084-1090. doi:10.1001/jamapsychiatry.2013.377.
  • Dhingra, Satvinder S. et al. “Change in Health Insurance Coverage in Massachusetts and other New England states by Perceived Health Status: Potential Impact of Health Reform.” American Journal of Public Health 103, no. 6 (June 2013): e107–e114. doi: 10.2105/AJPH.2012.300997.
  • Hoffman, Beatrix. “Health Care Reform and Social Movements in the United States.” American Journal of Public Health, 93, 1 (2003): 75–85.
  • Kessels, Roselinde et al. “How to reform western care payments systems according to physicians, policy makers, healthcare executives and researchers: a discrete choice experiment.” BioMed Central Health Services Research Journal 15, no. 191 (May 2015). doi: 10.1186/s12913-015-0847-7.
  • McWilliams, J. Michael. “Health Consequences of Uninsurance among Adults in the United States: Recent Evidence and Implications.” The Milbank Quarterly 87, no. 2 (June 2009): 443–494. doi: 10.1111/j.1468-0009.2009.00564.x.
  • Roberts, John L. et al. “What Residents Know About Health Care Reform and What We Should Teach Them.” Journal of Graduate Medical Education 3, no. 2 (June 2011): 155–161. doi: 10.4300/JGME-D-10-00122.1.
  • Tinsley, Liane J.; Hall, Susan A.; and McKinlay, John B. “Has Massachusetts health care reform worked for the working poor? Results from an analysis of opportunity.” Annals of Epidemiology 24, no. 4 (April 2014): 312–318. doi: 10.1016/j.annepidem.2014.01.003.
• Health Care Disparities
  • Charatz-Litt, C. “A chronical of racism: the effects of the white medical community on black health.” Journal of the National Medical Association 84, no. 8 (August 1992): 717–725.
  • Guerrero, Erik G. and Kao, Dennis. “Racial/ethnic minority and low-income hotspots and their geographic proximity to integrated care providers.” BioMed Central Health Services Research Journal 8, no. 34 (2013).
  • Kenny, John A. Jr. “Medical Civil Rights. The Drive for Medical Equality.” Journal of the National Medical Association 55, no. 5 (September 1963): 430–432.
  • Kirby, James B. and Kaneda, Toshiko. “Unhealthy and Uninsured: Exploring Racial Differences in Health and Health Insurance Coverage Using a Life Table Approach.” Demography 47, no. 4 (November 2010): 1035–1051.
  • Lavelle, Bridget and Smock, Pamela J. “Divorce and women’s risk of health insurance loss.” Journal of Health and Social Behavior 53, no. 4 (2012): 413–431. doi: 10.1177/0022146512465758.
  • Miller, Nancy A. et al. “The Relation Between Health Insurance and Health Care Disparities Among Adults With Disabilities.” American Journal of Public Health 104, no. 3 (March 2014): e85–e93. doi: 10.2105/AJPH.2013.301478

The National Information Center on Health Services Research and Health Care Technology (NICHSR) is a part of the National Institutes of Health and the National Library of Medicine. Its mission is to improve the collection, storage, analysis, retrieval and dissemination of health services research. NICHSR works to ensure that important health services research (HSR) and public health information and tools are available to the HSR and public health communities. NICHSR makes information readily available through its portals, databases, tutorials and collections. Health Services Research Information Central (HSRIC) is a web portal that highlights research and policy-relevant resources on general and specialized topics, with links to data sources, funding opportunities, reports, webcasts, news, and more. The web portal PHPartners.org similarly provides people who are interested in public or population health with links to timely and relevant resources needed to support evidence-based public health practice.

Visit NICHSR: https://www.nlm.nih.gov/hsrph.html
Visit HSRIC: https://www.nlm.nih.gov/hsrinfo/index.html
Visit PHPartners.org: https://www.phpartners.org/ph_public/hpro

Listed below are HSRIC pages that address topics relevant to the exhibit’s broad discussion of grass-root efforts to improve health care access, cost, utilization and outcomes; and several PHPartners.org pages that address topics relevant to the exhibit’s broad discussion of grass-root efforts taken to improve health care access, cost, utilization and outcomes.

• HSR Information Central
  • Aging Population Issues
  • Child Health Services Research
  • Community Benefit / Community Health Needs Assessment
  • Health Care Reform, Health Economics, and Health Policy
  • Health Disparities
  • Health Literacy and Cultural Competence
  • Rural Health
• PHPartners
  • Environmental Health
  • Health Promotion and Health Education
  • HIV/AIDS
  • Nutrition

The National Library of Medicine (NLM) maintains and makes available a vast collection of materials related to a wide range of topics on medicine and human health, including health care reform debates and policies. Listed below are examples of items that cover health care reform topics from the NLM’s general and history of medicine collections.

• Health Care Reform
  • Alper, Joe. Population health implications of the Affordable Care Act: workshop summary. Washington, DC: National Academies Press, 2014.
  • Committee for the Nation’s Health. Microfilm Reels of the Committee for the Nation’s Health Records from the Michael M. Davis Collection, in the New York Academy of Medicine. 1939–1955; MS Film 32. https://oculus.nlm.nih.gov/cnhr
  • David, Sheri I. With dignity: the search for Medicare and Medicaid. Westport, CT: Greenwood Press, 1985.
  • Engel, Jonathan. Poor people’s medicine: Medicaid and American charity since 1965. Durham, NC: Duke University Press, 2006.
  • Funigiello, Philip J. Chronic Politics: health care security from FDR to George W. Bush. Lawrence, KS: University Press of Kansas, 2005.
  • Grey, Michael R. New Deal medicine: the rural health programs of the Farm Security Administration. Baltimore, MD: Johns Hopkins University Press, 1999.
  • Lefkowitz, Bonnie. Community health centers: a movement and the people who made it happen. New Brunswick, NJ: Rutgers University Press, 2007.
  • Koslow, Jennifer Lisa. Cultivating health: Los Angeles women and public health reform. New Brunswick, NJ: Rutgers University Press, 2009.
  • Pavalon, Eugene I. and Birnbaum, David A. Human rights and health care law. New York, NY: American Journal of Nursing Co., Education Services Division, 1980.
  • Shelton, Michael W. Talk of power, power of talk: the 1994 health care reform debate and beyond. Westport, CT: Praeger, 2000.
  • Steinhardt, Bruce J. and Matthew DeCuypere. Assuring children’s access to health care: fixing the Medicaid safety net. Alexandria, VA: National Association of Children’s Hospitals and Related Institution, 1989.
• Health Insurance
  • Ameringer, Carl F. The health care revolution: from medical monopoly to market competition. Berkeley, CA: University of California Press, 2008.
  • Bachman, George W. and Lewis Meriam. The issue of compulsory health insurance. New York, NY: Arno Press, 1976.
  • Coombs, Jan. The rise and fall of HMOs: an American health care revolution. Madison, WS: The University of Wisconsin Press, 2005.
  • Cunningham, Robert, III. The Blues: a history of the Blue Cross and Blue Shield system. DeKalb, IL: Northern Illinois University Press, 1997.
  • Kirsch, Richard. Fighting for our health: the epic battle to make health care right in the United States. Albany, NY: Rockefeller Institute Press, 2001.
  • Weindling, Paul, ed. Healthcare in private and public from the early modern period to 2000. New York, NY: Routledge, 2015.
• Medical Profession
  • Berry, Leonidas H. Leonidas H. Berry papers. 1907–1982; MS C 423.
  • Dittmer, John. The good doctors: the Medical Committee for Human Rights and the struggle for social justice in health care. New York, NY: Bloomsbury Press, 2009.
  • Engel, Jonathan. Doctors and reformers: a discussion and debate over health policy, 1925–1950. Colombia, SC: University of South Carolina Press, 2002.
  • Fee, Elizabeth and Liping Bu. “The Origins of Public Health Nursing: The Henry Street Visiting Nurse Service.” American Journal of Public Health. 100, 7 (2010): 1206–1207. doi: 10.2105/AJPH.2009.186049.
  • Kiefer, Kay E. “American doctors and national health care policy” (PhD diss.,Southern Illinois University, 1982).
  • Starr, Paul. The social transformation of American medicine. New York, NY: Basic Books, 1982.
  • Visiting Nurses Service photo album, 1932–1935. Henry Street Settlement (New York, NY); MS C 298.
• Occupational health
  • Clark, Claudia. Radium girls, women and industrial health reform. Chapel Hill, NC: University of North Carolina Press, 1997.
  • Nugent, Angel. Organizing trade unions to combat disease: the Worker’s Health Bureau. New York, NY: Tamiment Institute, 1985.
  • Rosner, David and Markowitz, Gerald. Deadly dust: silicosis and the on-going struggle to protect workers’ health. Ann Arbor, MI: University of Michigan Press, 2006.
  • Rosner, David and Gerald Markowitz, eds. Dying for work: workers’ safety and health in twentieth-century America. Bloomington, IN: Indiana University Press, 1987.